Spontaneous • \spahn-TAY-nee-us\ • adjective
1 : done, said, or produced freely and naturally 2 : arising from a momentary impulse 3 : produced without being planted or without human labor : indigenous 4 : acting or taking place without apparent external cause or influence
Getting back in this saddle is harder than I thought. I'm usually spontaneous about doing things without thinking, but this is totally different.
I'll be honest, I think we are both excited about this new beginning, but we have both forgotten the time frame and what happens after the five days of chemo and then the transplant. There are some factors in it that won't be placed out this phase.
We are anxious. We want to get this on the road so we can make plans for upcoming "changing of the colors", Thanksgiving and Christmas. We want all this completed by those dates.
We think he will probably begin next week, but Dr. Z has been out of pocket for a while. All the tests are back and insurance has approved for him to have the transplant here and not at MD Anderson in Houston. I was very worried about that, but our nurses and social workers worked hard on that. I can't imagine leaving town for treatment like other patients.
He is completely bald right now. All the way down to his privates. Somehow he gets some humor out of it.
Dinner was very filling and he even went in for a dessert of crumb cake. With the appetite coming by up I also have seen the labs coming back up.
I am hoping to get this show on the road by the first of next week. We have our reservations made the first week of November and our friends are making theirs one by one. If he is weak or ill that week, we can go to Plan B.... Drive the truck.
He feels well and has more energy. His BP is stable with the meds we have been giving him so that may be the added energy. Although, he was just napping as I began to type.
Work associates are not invited to the blog because of new rules. Something we can't control right now. We just don't want to push the envelope too far. Another reason we are not sharing these posts on FB
All labs looked good today. I hope he took the lactulose I put in his shot glass. His ammonia came up two levels. I may have to do like the nurses and bring it to him and watch him take it down Snork
Don't wanna wait too long to be off the last chemo which was August 13 for four days. It was suppose to be out of his system last week. He's come too far to have a set back now. I truly believe we will hear from the clinic tomorrow. We are ready, ready. ready.. Because we are familiar...
Good night and Love , Pepper...
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