Chemo Sabe

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Benton, AR, United States
Diagnosed with Multiple Myeloma-- May 2008

Wednesday, October 14, 2015

Affluent - Word for the Day -- Wednesday, October 14, 2015


affluent  \AF-loo-unt\


 Definition:  adjective

  1.     flowing in abundance
  2.     having a generously sufficient and typically increasing supply of material possessions
 
Okay, Kids..... Let's be honest!  I'm scared.  I get emails on Poppy's UAMS account when he has results on his labs, we have a payment due on one of his 16 accounts, or his lab appointment is due or any testing that is scheduled and, of course, his doctor's appointments. 
 
Soooooo, I got the much anticipated email yesterday.... It's the appointment schedule we've been waiting for... Here it is:
 
                      Beginning Friday and lasting to Monday, November 2:
                      Friday, October 16, 1:30 p.m. -- Appointment with Dr. Z
                      Saturday, October 17,  8:30 a.m. - High dose resource (chemo)
                      Sunday, October 18, 8:30 a.m. - High dose resource (chemo)
                      Monday, October 19, 8:30 a.m. - High dose resource (chemo)
                      Monday, October 19, 3:30 p.m. - Labs
                      Tuesday, October 20,  8:30 a.m. - High dose resource (chemo)
                      Wednesday, October 21, 8:30 a.m. - High dose resource (chemo)
                      Thursday, October 22, 8:30 a.m. -- Stem Cell Transplant
                      Friday, October 23, 8:30 a.m. -- High dose resource (chemo)
                      Saturday, October 24,  8:30 a.m. - High dose resource (chemo)
                     Sunday, October 25, 8:30 a.m. - High dose resource (chemo)
                     Monday, October 26, 8:30 a.m. - High dose resource (chemo)
                     Monday, October 26, 3:30 p.m. - Labs
                     Tuesday, October 27, 8:30 a.m. - High dose resource (chemo)
                     Monday, Nov 2., 3:30 p.m. - Labs
 
This schedule is to change out his chemo bags every 24 hours.  I believe, if it's like in the beginning, he will have four different types of chemo running through his system with a stomach shot each day in clinic.  One will be "Red Devil".  If the bag leaks or the tube breaks we have to transport it back to clinic IMMEDIATELY.  If it touches your skin, it will eat it like acid!!! And, this stuff is running through his body!!!
 
We haven't spoken about the treatment, only for him to ask me to contact scheduling to change the bag outs to 3:00 p.m. so he can work during the day.  I tried that... I was informed it has to be a morning schedule because of the intense and brutal chemo he will be getting.  And, all the doctors and the most experienced nurses in Infusion leave at 4:00 p.m.  If anything comes up with him, such an infection, low counts, needing blood or platelets, it can be address early in the day.  I agree with that. 
 
I haven't discussed the reasons for the morning schedule with him, because he decided at the last minute yesterday he wanted to stop in at Luigis for a Date Night.  Something we haven't done since June when he began to get sick.  I haven't discussed the word, "brutal" with him either.  I don't think it is a word he needs to hear right not.

He needed a break to try to act normal about things...  It was a good break and we had one of our biker friends to join us.  We got to laugh.
 
He has an acquaintance at work that has been with property management for over 20 years, Marvin.  Marvin developed cancer last year and occasionally Poppy would give me updates on his condition.  Marvin passed away over the weekend.  I know it has really weighed on Poppy's mind.
 
Last night, after we got in bed, I looked back through my phone at dates trying to refresh my memory on the things we did during his last transplant.  I do have the yearly recurring dates of his last transplant, the bridging and everything, but only because they recur yearly. But, it doesn't give me our daily activities.  So, tonight I'm going to go back through my Daytimers to see if I can find when he went neutropenic, when he had to be confined, how long he was off work and other details. 
 
We just can't schedule anything right now with our work schedules.  I have alerted my boss that on some days I may call in unexpectedly for a vacation day.  I have six left.  He, however, has NO days left for the rest of the year.  He is so concerned about his job with the new management.  We will just have to take it as it comes.
 
My cooking will change after Saturday.  No more spicy foods!!!!!  Dangit, I was gonna make chili this weekend.  He claims to everyone, for some reason lately, that chocolate is a good source for potassium, magnesium and phosphate.... Hellllooooo, I see a batch of fudge and chocolate oat cookies coming down the pike!
 
I have been buying up extra groceries for the days he isn't well enough for me to venture out.  So, here comes my Word for the Day --- We are affluent in our needs for nutrition.  We have actually been very blessed to have any of the things we have.  We have worked hard over our years.  I am confident we will have many more years to have and enjoy things we are accustomed to.  We have spoiled ourselves!!
 
Good Day and Love -- Pepper
 

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