DEFINITION: (noun) something different or irregular.
Hello, Children. Again, I have not written in a while even after I promised you I wouldn't keep you hanging again. If I keep this up you will get out of the habit of reading. My fault if that happens.
Labs yesterday shows WBC at 4.5 with platelets still at a massive 155. Crap (CRP) is <5. He is still doing well.
Friday we have labs, the dreaded bone marrow biopsy and an MRI. We have our follow up doctor visit on Tuesday. We have made up our minds to be adamant about holding off on the second stem cell transplant until after January.
Our insurance matters still seem to plague us. Our insurance company has two stories on ChemoSabe's prescriptions. I can go to one pharmacy with no problem and pay just a few dollars (like $9.00) and the other pharmacy claims we have reached our yearly limit and I have to pay $2,500 for one and $2,800 for others. The pharmacies get different stories from the insurance company -- our coverage picks back up on Oct. 1 or Jan. 1. When I speak to the insurance company myself over the phone they indicate coverage is the same as the medical insurance -- calendar year, beginning Jan. 1. BUT, I received a letter from the same insurance company the day before my call to them and it clearly indicates the prescription coverages begins Oct. 1.
Here is the advice from the case manager at the insurance company. If you are requested to pay the lowest, don't ask questions. If you are requested to pay the highest, pay it. Wow, why couldn't I have thought of that? She also informed me when we are asked to pay the lowest, she wanted the name of the person we talk to at her insurance firm. I told her I already knew the name --- God!
So, this is where anomaly comes in. Insurance can't keep up with themselves.
We have been enjoying ChemoSabe's time off from the daily UAMS visits. He is still doing his weekly labs, bridging meds and nightly blood thinner shots. I have given him about four more bruises. I believe his blood is so thin that it is causing the bruising. The shots are not hurting him. In fact, he doesn't even feel them when I insert the needle, but.....
We have been riding every weekend. I believe I told you about the Bikes, Blues and BBQ in Fayetteville the last weekend of Sept. This last weekend ChemoSabe made plans with a client of his for us to meet up with him and two other bikes to go up to Mt. Magazine. About 100 miles one way. ChemoSabe worked and worked on the bikes. Cleaning, spit shining, polishing the leather and our chaps, etc. Chance of rain -- 20%. We got all suited up and the bottom fell out of the sky. Ended up spending the afternoon on the couch watching rented movies. Two horrible ones. Leatherheads with George Clooney and Deception with Hugh Jackman.
Sunday morning late, we rounded ourselves up and the two of us rode up there alone. Yes, we skipped church. It was a crisp, beautiful day. We went up the scenic highway and it was like ole times with Poppy. We left about 11:30 after he fixed his famous bacon. We stopped halfway and got our favorite travel snack -- gizzards. We got home around 8:30 p.m. with sore tails and big smiles.
ChemoSabe has been working full steam ahead. He traveled every day last week as far out as Memphis and Shreveport. This week has been ultimately the same. To him this is an anomaly from his regular schedule at UAMS. He is also back to some late night calls and times of getting up in the middle of the night and disappearing from the house. HE LOVES IT!
He looks healthy and is eating quite healthy. In turn, so am I. I have tried to cut down, but I tend to nibble on dinner while I am waiting for him to come home and then I eat with him when he arrives. AND, of course, since his appetite is good for now, I have also been serving dessert. He stays slim and I am growing. I think I heard my bike groan when I got on it the other day or could it have been the rubber stretching on the tires?
Please continue to pray for us and our decisions next week. Please also continue to pray for our MM friends.
Good night and Love -- Pepper
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