Evanescent
Definition: Tending to vanish like vapor
Been kinda quite this week with my man gone. I have enjoyed the silence and independence, but I don't like the silence and the independence. Doesn't make sense, does it? This trip has been the worse one, but the best one. He knows his limits and has been coming in after dinner and enjoying his quite study time. That helps me, too.
This is the last week where he will be off meds. He thinks his shots are evanescent in that he has some reactions. His face is bloated, his cheeks are splotched and his eyes have been burning and red. He claims it is because he is off the steroids. I have tried to refresh his memory that he had that problem before cancer came along. Why does he then look at me like 'don't I know that cancer is the reason for everything?'
We have talked each night. Last night for 45 min and tonight for 40. He is loving his room. He is right on the ocean and has a balcony with a small patio. He forgot and left the door open all night and slept like a baby. When he got out of the shower this morning he saw something white fly by. He went to the balcony and there sat two seagulls on the next balcony waiting for food. He figured he better shut his door.. ha
The meeting he is attending is the 2010 KickOff... and to reward for 2009. Last year he got seven awards and this year it was four... The best ones though. He loves that work and the people.
I think I saw an email already that he has work going on Saturday.
He told me a story about one of his Infusion nurses. She has a five year old grandson. He was suspended from school with a friend of his.... Mooning!!! Somehow it didn't seem to be his fault! ha
Labs went very well and the crap stayed down real good. He is still gaining more weight that we can handle, but I truly believe when we get back on those bikes we can sweat it out. I'm just sayin..
I look at him and see him asleep or working on his computer, or eating, or just sitting and daydreaming. He has changed in so many ways physically. He looks older but not haggard. Then when I look real deep I stiill see my man in there. Especially when he looks over at me and I see the twinkle in his eys.
Work, for me, has been going quite well. I feel I can finally do what I was hired to do. No hurdles. I hear a new pastor will be in in a couple of months. That will be a trying time for me, then.
Our son has been so good to us lately. With the bad weather and such. He even took time out of his Sunday, while we were in church to come over and do a big project for us. The bad part is we didn't notice it for a week. I thought ChemoSabe did it and he thought I did it... Then we looked at each other and laughed..when we realized who really did it.
We start back on the Dex and Velcade next week. I did his survey this week. You have to answer a series of questions about your sex life, can you get pregnant, have you shared your meds, blah, blah, blah. That's every month. Then when the order is ready they call you and you have to do the same survey again. BUT, they then ship it overnight next day delivery, FREE!
Boys are in the bed and I wouldn't have been up this late if ChemoSabe hadn't needed me.. So I'm headin for the hills.
Sleep Tight and Love -- Pepper
Chemo Sabe
- ChemoSabe
- Benton, AR, United States
- Diagnosed with Multiple Myeloma-- May 2008
Tuesday, February 2, 2010
Thursday, January 21, 2010
Recipe -- Word for the Day -- Thursday, January 21, 2010
Recipe
Definition: prescription: a set of instructions for making something from various ingredients: a formula or procedure for doing or attaining something
Just to catch you up on the labs and the last two weeks of treatment. And, drama...
Recipe -- If I were to do my own definition it would be: a meal of special ingredients shared with friends.
Last night I fixed stuff bell peppers. We haven't had those in a while. I took Son one to work this morning and he says you just can't imagine how much you can cram into a bell pepper. ChemoSabe couldn't eat all of his.
Tonight I fixed chicken breasts, rice and English peas. We have been lying off the bread... ChemoSabe can eat four pieces with margarine. Most times he brings out the Apple Butter. We have GOT TO LOSE!
I have been walking two miles in the afternoon with my favorite neighbor. We are walking it in 25 minutes. We are going to try for three next week. We walked so hard last week that my cheeks were sore to sit on when we went out to eat Friday night. Working those muscles.
So, back in dinner tonight. My boss, Ken, is always cooking. We talk about our favorite recipes. He spoke of one last week that I thought I would try, but I have been experimenting elsewhere. His is of Telapia. Sauteing onions, tomatoes and wine together. Well, tonight I did chicken breasts... See below
Put a 1/4 cup of oil in a skillet. Add your chicken breasts and heat high as if you are frying. Slightly brown on each side. Take out and drain on paper towel. While drying -- Heat in the oil chopped onions, bell peppers, and diced tomatoes (you can used canned, drained). Add 1/2 cup of red wine, salt, pepper and teaspoon of minced garlic. Saute until onions/peppers are just past crisp. Lower heat and add chicken... Simmer until you think it is JUST RIGHT..
Do your rice and peas. Then pour the chicken mixture over the rice... ENJOY this recipe! This is an easy dish for the guys to fix, too. Just make sure you don't drink the rest of the bottle of wine while you are cooking! ha
I want to mow tomorrow. It is suppose to be nice. I have cabin fever. If it rains, I can see the whole house being rearranged.
Labs have been very good the last two weeks, except I am still concerned about the WBC... It is at 3.5. His CRP (crap) is at 7. We think that is a result of another bruise on the top of his hand. If it ain't Pete scratching him, he is bumping it on the bike or something else.
He is having problems again with the left foot. It doesn't seem to be neuropathy. He took himself off the Gabapintine a couple of weeks ago since the numbness seemed to be less frequent. The last two days have resulted in massive pain in the arch, especially at night. I thought he was having cramps. He couldn't lie down or walk last night. It was some good strong pain, so tonight I started him back on it in the a.m. and p.m.
Since last week was the first week on and last Dex was on Friday, it brought on a rash of snappiness. I saw it coming last weekend and this week has resulted in more, but more toward work than toward me. I think he has learned his lesson! ha. He works through it very well by apologizing when it occurs, no matter who it is with or what it is about.
We are babysitting the Valentine's Day weekend. That will help take my mind off my mother. It will be a year since her passing. Seems just like yesterday.
Work has been unusual for both of us this week. I prayed for changes and got more than I expected and unexpected. It will be a challenge, but you know me, I love challenges. They energize me. When I focus on something hard, then I tend to lose weight. The great recipe for weight loss.
We had good news this week in that two insurance reports showed his cancer insurance is paying 100%. What happened? Thought we had met the million dollars limit in January 2009... It hasn't even been two years. But, that was only two bills out of 14 accounts. Oh, hum.
Guess it is time to get to bed.... I will continue to keep you posted.
Don't forget Valentine's Day -- you guys!
Good night and Love -- Pepper
Definition: prescription: a set of instructions for making something from various ingredients: a formula or procedure for doing or attaining something
Just to catch you up on the labs and the last two weeks of treatment. And, drama...
Recipe -- If I were to do my own definition it would be: a meal of special ingredients shared with friends.
Last night I fixed stuff bell peppers. We haven't had those in a while. I took Son one to work this morning and he says you just can't imagine how much you can cram into a bell pepper. ChemoSabe couldn't eat all of his.
Tonight I fixed chicken breasts, rice and English peas. We have been lying off the bread... ChemoSabe can eat four pieces with margarine. Most times he brings out the Apple Butter. We have GOT TO LOSE!
I have been walking two miles in the afternoon with my favorite neighbor. We are walking it in 25 minutes. We are going to try for three next week. We walked so hard last week that my cheeks were sore to sit on when we went out to eat Friday night. Working those muscles.
So, back in dinner tonight. My boss, Ken, is always cooking. We talk about our favorite recipes. He spoke of one last week that I thought I would try, but I have been experimenting elsewhere. His is of Telapia. Sauteing onions, tomatoes and wine together. Well, tonight I did chicken breasts... See below
Put a 1/4 cup of oil in a skillet. Add your chicken breasts and heat high as if you are frying. Slightly brown on each side. Take out and drain on paper towel. While drying -- Heat in the oil chopped onions, bell peppers, and diced tomatoes (you can used canned, drained). Add 1/2 cup of red wine, salt, pepper and teaspoon of minced garlic. Saute until onions/peppers are just past crisp. Lower heat and add chicken... Simmer until you think it is JUST RIGHT..
Do your rice and peas. Then pour the chicken mixture over the rice... ENJOY this recipe! This is an easy dish for the guys to fix, too. Just make sure you don't drink the rest of the bottle of wine while you are cooking! ha
I want to mow tomorrow. It is suppose to be nice. I have cabin fever. If it rains, I can see the whole house being rearranged.
Labs have been very good the last two weeks, except I am still concerned about the WBC... It is at 3.5. His CRP (crap) is at 7. We think that is a result of another bruise on the top of his hand. If it ain't Pete scratching him, he is bumping it on the bike or something else.
He is having problems again with the left foot. It doesn't seem to be neuropathy. He took himself off the Gabapintine a couple of weeks ago since the numbness seemed to be less frequent. The last two days have resulted in massive pain in the arch, especially at night. I thought he was having cramps. He couldn't lie down or walk last night. It was some good strong pain, so tonight I started him back on it in the a.m. and p.m.
Since last week was the first week on and last Dex was on Friday, it brought on a rash of snappiness. I saw it coming last weekend and this week has resulted in more, but more toward work than toward me. I think he has learned his lesson! ha. He works through it very well by apologizing when it occurs, no matter who it is with or what it is about.
We are babysitting the Valentine's Day weekend. That will help take my mind off my mother. It will be a year since her passing. Seems just like yesterday.
Work has been unusual for both of us this week. I prayed for changes and got more than I expected and unexpected. It will be a challenge, but you know me, I love challenges. They energize me. When I focus on something hard, then I tend to lose weight. The great recipe for weight loss.
We had good news this week in that two insurance reports showed his cancer insurance is paying 100%. What happened? Thought we had met the million dollars limit in January 2009... It hasn't even been two years. But, that was only two bills out of 14 accounts. Oh, hum.
Guess it is time to get to bed.... I will continue to keep you posted.
Don't forget Valentine's Day -- you guys!
Good night and Love -- Pepper
Wednesday, January 13, 2010
Discord -- Word for the Day -- Wednesday, January 13, 2010
Discord
Definition: lack of agreement or harmony (as between persons, things, or ideas): ctive quarreling or conflict resulting from discord among persons or factions
Here we go! ChemoSabe started his cycle yesterday. Whenever he begins again every two weeks, it seems months since the last time. I scramble to the get med bottles to him to refill that he doesn't use daily. Then I call and do his survey for the Revlidmid. You basically have to do it twice and then you have to call the clinic to get it ordered. It's not like we wait to the last minute, but it seems that way.
With that, steroids began yesterday and he was up at the side of the bed at 3:30 a.m. kissing me. I thought, "What the heck?" I knew we had already kissed goodnight. He was fully clothes and smelled of cologne, hair spray, toothpaste and fabric softener from clean clothes. I looked at him through my little peepers and asked, "What's wrong?" He told me he was leaving for work..... STEROIDS! Could the man just not go ahead and clean my house in the wee hours of the morning instead of going to work? ha
His labs were good yesterday except for his WBC. They had dropped from 8.5 two weeks ago to 3.5 yesterday. Remember - 2.5 is the lowest before you go neutrapenic, meaning it will be mask time and restricting access. When we get his report on Friday we will know if we need to keep the kids up (dogs) and limit our contact with the grandkids or other outside sources.
The Word for the Day -- Discord -- deals with difficulties I am handling at work this week. I hate conflict, but it seems to follow me in my life in a personal or business relationship. ChemoSabe tells me at times, lovingly of course, that it is because I am too honest. How can one not be honest? It is true people usually know the hard truth of how they stand with me, but I am just not a kissy face. So, please pray for me during this time. Pray I will have patience, strength and the means to choose the right things to say and do in this time of stress.
We are eating well in the last few weeks after the holiday. One meat and two veggies without a dessert. I will also fix a fresh salad. It has been helping. We don't feel as bloated or full when we retire.
I will keep you updated on the physical data on ChemoSabe during or at the end of the week.
Good afternoon and Love -- Pepper
Definition: lack of agreement or harmony (as between persons, things, or ideas): ctive quarreling or conflict resulting from discord among persons or factions
Here we go! ChemoSabe started his cycle yesterday. Whenever he begins again every two weeks, it seems months since the last time. I scramble to the get med bottles to him to refill that he doesn't use daily. Then I call and do his survey for the Revlidmid. You basically have to do it twice and then you have to call the clinic to get it ordered. It's not like we wait to the last minute, but it seems that way.
With that, steroids began yesterday and he was up at the side of the bed at 3:30 a.m. kissing me. I thought, "What the heck?" I knew we had already kissed goodnight. He was fully clothes and smelled of cologne, hair spray, toothpaste and fabric softener from clean clothes. I looked at him through my little peepers and asked, "What's wrong?" He told me he was leaving for work..... STEROIDS! Could the man just not go ahead and clean my house in the wee hours of the morning instead of going to work? ha
His labs were good yesterday except for his WBC. They had dropped from 8.5 two weeks ago to 3.5 yesterday. Remember - 2.5 is the lowest before you go neutrapenic, meaning it will be mask time and restricting access. When we get his report on Friday we will know if we need to keep the kids up (dogs) and limit our contact with the grandkids or other outside sources.
The Word for the Day -- Discord -- deals with difficulties I am handling at work this week. I hate conflict, but it seems to follow me in my life in a personal or business relationship. ChemoSabe tells me at times, lovingly of course, that it is because I am too honest. How can one not be honest? It is true people usually know the hard truth of how they stand with me, but I am just not a kissy face. So, please pray for me during this time. Pray I will have patience, strength and the means to choose the right things to say and do in this time of stress.
We are eating well in the last few weeks after the holiday. One meat and two veggies without a dessert. I will also fix a fresh salad. It has been helping. We don't feel as bloated or full when we retire.
I will keep you updated on the physical data on ChemoSabe during or at the end of the week.
Good afternoon and Love -- Pepper
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