Wart
Definition: projection on the skin usually of the extremities produced by proliferation of the skin papillae and caused by any of numerous human papillomaviruses —called also verruca vulgaris b: any of numerous similar skin lesions not caused by viruses
ChemoSabe has been doing extremely well, EXCEPT, for another round of sinus/cold like symptoms and a Wart, no less, on the end of his nose.
I have been very concerned about the congestion he has had since the weekend. I felt it might be pollen, but he began to react in the same way he did when he had the walking pneumonia. He visited clinic yesterday after labs and spoke with our transplant nurse about it. If he hasn't cleared up by the end of the week he will be placed by on Levaquin (antibiotic).
He also discussed the 'wart' on the end of his nose. She suggested he go to our family doctor or dermatologist and have it checked out and a biopsy run. She wants to make certain it isn't another form of MM. Gosh, I would hate for that to be another side affect the MM patients have to look for.
We headed out on the bikes to Eureka Springs on Saturday a.m. early. We went by ourselves and we had the best time. After we arrived we had lunch and then went back to the room. We thought since we didn't travel with anyone we would take a nap. Something we wish we could do when we do travel with others. Well, we did lie down, but after about 1-1/2 hours we got up. No nap in sight. Neither of us could sleep.
We did call the local catfish place and ordered take out. We weren't really hungry and didn't want to waste time in a restaurant and didn't really want to walk downtown. There was a CMA rally (Christian Motorcycle Assc) and the bikes in town were enormous. So we went back to the room and ate. Afterward we sat outside with two couples we met from Kansas.
We did do a little shopping on Sunday and actually talked ourselves out of a major purchase. Rain suits for the both of us. We have light weight pull ons now and we decided we didn't ride often enough in the rain to carry the extra weight of more expensive suits.
I did not take one photo. We came back down Hwy. 7 to Russellville and the views were awesome. The wind to and from was about 25 mph and it was tiring to hold on constantly. The mountains seemed to be the worse.
We just had a very good time with each other. Kicked back and relaxed. I wish we could have stayed a couple of more days. BUT, we have the rest of the summer.
Our next doctor's appt. is May 19. After another round of MRI, Pet Scan, bone marrow biopsy and CT scan. I guess this is a confirmation that he doesn't need another round of chemo right now.
My sister-in-law is back in the hospital after a chemo round last week. She just can't keep her counts up and blood pressure. She is low on oxygen, too. Something my mother dealt with constantly. Please keep Sharon in your prayers, along with my little (6 ft. 3 in.) brother. He is a very emotional person and is still dealing with the death of my mom. Mother's Day is next week, so I know that is weighing on him. It has begun a toll on me, as well.
ChemoSabe has an appt. with the family doc tomorrow for his nose. I will keep you posted.
I truly enjoy having his ole self back. He is still working his too-too off.
Good evening and Love -- Pepper
Chemo Sabe
- ChemoSabe
- Benton, AR, United States
- Diagnosed with Multiple Myeloma-- May 2008
Tuesday, April 28, 2009
Wednesday, April 22, 2009
REMISSION -- Word for the Day -- Wednesday, April 22, 2009
REMISSION -- That is where we are... We are thinking about what ChemoSabe and I were experiencing a year ago today as he was diagnosed with Multiple Myeloma. After five chemo treatments and a stem cell transplant, he is in remission. Praise God from whom all blessings flow. AND, we could not have done it without our son, Tommy, Nurse Chundy, Sister Teresa, friend Sandy, brother Gordon whom came in from out of town to baby sit the zoo so we could get away and many others that mowed our yard and cut down trees after the storms. The encouragement we received was like nothing we have experienced before.
His labs continue to climb after his visit to the ER on Wednesday, April 15. He had to be taken by ambulance. I thought he was having a stroke. He was incoherent and stumbling with his eyes looking masked over. The reason was because of dehydration from gaining 25 lb. the week before and losing 25 lb. the next week. Given fluids, we continue to monitor his blood pressure.
With that, we monitor mine also, and find it has been quite elevated the last few weeks.. Hmmmm... I wonder why? I think the relief of hearing the news about No Mo Chemo has overwhelmed me. I was geared up to continue with all the responsibilities of the home and the constant medication. I finally had, what I call, my nervous breakdown last week. I cried and 'convulsed' to no end. I was so embarrassed as ChemoSabe patted me, hugged me and told me to just let it go. Even though I have cried more times in the last year than I have in the last ten, this one was different. It was like a flood.
We seem to be back to normal with our lives. The MM is still in our minds, but we don't have to plan around UAMS visits daily and on the weekends. In fact, we are heading out to Eureka Springs alone this week to, dare I say, honeymoon! (red faced am I)
My writings will be limited the next few weeks. My home computer crashed. The mother board went out. It must have heard our income tax had come in. I was lucky I had backed up all my files on an external drive over the holidays. I have about 3,000 photos on it along with my other folders.
You all have made the trip the last year easier for us. Your calls, emails, help and just plain listening.
Until I can write again.
Good day and Love -- Pepper
His labs continue to climb after his visit to the ER on Wednesday, April 15. He had to be taken by ambulance. I thought he was having a stroke. He was incoherent and stumbling with his eyes looking masked over. The reason was because of dehydration from gaining 25 lb. the week before and losing 25 lb. the next week. Given fluids, we continue to monitor his blood pressure.
With that, we monitor mine also, and find it has been quite elevated the last few weeks.. Hmmmm... I wonder why? I think the relief of hearing the news about No Mo Chemo has overwhelmed me. I was geared up to continue with all the responsibilities of the home and the constant medication. I finally had, what I call, my nervous breakdown last week. I cried and 'convulsed' to no end. I was so embarrassed as ChemoSabe patted me, hugged me and told me to just let it go. Even though I have cried more times in the last year than I have in the last ten, this one was different. It was like a flood.
We seem to be back to normal with our lives. The MM is still in our minds, but we don't have to plan around UAMS visits daily and on the weekends. In fact, we are heading out to Eureka Springs alone this week to, dare I say, honeymoon! (red faced am I)
My writings will be limited the next few weeks. My home computer crashed. The mother board went out. It must have heard our income tax had come in. I was lucky I had backed up all my files on an external drive over the holidays. I have about 3,000 photos on it along with my other folders.
You all have made the trip the last year easier for us. Your calls, emails, help and just plain listening.
Until I can write again.
Good day and Love -- Pepper
Monday, April 13, 2009
GOD -- Word for the Day -- Monday, April 13, 2009
GOD -- is good all the time and all the time GOD is good.
FRIDAY, APRIL 10 2008, marks one year that ChemoSabe (Jim) fell off the roof and broke his wrist. Same day we were told something was more serious than a metal plate and ten screws. We started our Multiple Myeloma journey on May 7, 2008… THAT DREADED VISIT
FRIDAY, APRIL 10, 2009 our anniversary of the new life we have lived and you have been there with us. You have made us strong when we were down. Took care of us when we called and we didn’t have to wait on you, either. You have traveled miles, and miles, and miles to take of our needs, especially during the time of the loss of my mother. BUT, GOD is the one that got us through this all.
FRIDAY, APRIL 10, another DREADED VISIT, because his counts came down and his immune system is very low. We have to stay in and away from people until about Tuesday. We were worried something else may have shown up in the tests from his fainting spell on Wednesday and the visit to the ER.
He received two more units of fluid on Friday. He got one in ER on Wed and two yesterday. Ho Hum…. Same ole stuff we hear every visit. THEN… we heard something we were TOTALLY unprepared for ---------------- She says, “Well, that’s it. You are done. You did very well in the Second Consolidation.” We looked at each other and then at her (that deer in the head light look)… We asked what she meant… “No more chemo”. I will see you next week when your treatment is done and then in three months. NO MO CHEMO!!!
I could not catch my breath and ChemoSabe had tears in his eyes. It was like last year, all over again. Listening to someone tell you that you have cancer and maybe six months or go to UAMS… We could not believe it --- NO MORE CHEMO TREATMENTS!!!!!!
Thank my Glorious God and the things he provided for us. What a week to give it to us. Thank you God…. Thank you ALL..
LOVE - Pepper
FRIDAY, APRIL 10 2008, marks one year that ChemoSabe (Jim) fell off the roof and broke his wrist. Same day we were told something was more serious than a metal plate and ten screws. We started our Multiple Myeloma journey on May 7, 2008… THAT DREADED VISIT
FRIDAY, APRIL 10, 2009 our anniversary of the new life we have lived and you have been there with us. You have made us strong when we were down. Took care of us when we called and we didn’t have to wait on you, either. You have traveled miles, and miles, and miles to take of our needs, especially during the time of the loss of my mother. BUT, GOD is the one that got us through this all.
FRIDAY, APRIL 10, another DREADED VISIT, because his counts came down and his immune system is very low. We have to stay in and away from people until about Tuesday. We were worried something else may have shown up in the tests from his fainting spell on Wednesday and the visit to the ER.
He received two more units of fluid on Friday. He got one in ER on Wed and two yesterday. Ho Hum…. Same ole stuff we hear every visit. THEN… we heard something we were TOTALLY unprepared for ---------------- She says, “Well, that’s it. You are done. You did very well in the Second Consolidation.” We looked at each other and then at her (that deer in the head light look)… We asked what she meant… “No more chemo”. I will see you next week when your treatment is done and then in three months. NO MO CHEMO!!!
I could not catch my breath and ChemoSabe had tears in his eyes. It was like last year, all over again. Listening to someone tell you that you have cancer and maybe six months or go to UAMS… We could not believe it --- NO MORE CHEMO TREATMENTS!!!!!!
Thank my Glorious God and the things he provided for us. What a week to give it to us. Thank you God…. Thank you ALL..
LOVE - Pepper
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