Chemo Sabe

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Benton, AR, United States
Diagnosed with Multiple Myeloma-- May 2008

Friday, November 6, 2009

Nudnik -- Word for the Day -- Friday, November 6, 2009

Nudnik

Definition: a person who is a bore or nuisance

Oh my... what a word for the dictionary to select today. I don't know of too many individuals that fit in that category to me. I like to listen. Believe you me, I get some doozers in the office some times.

Today is my day off and I heard of yet another shooting in our nation. As soon as it came on the screen I turned it off. Choose to get in the shower with the three boys (Parker, Kipper and Pete). They were in dire need of a bath anyway.

I watched last evening the news of Ft. Hood. My son was born on a military base in Virginia 41 yr. ago. It was where I lived for two years. I felt safe. ChemoSabe and I took a vacation eight years ago and went back up there. It is such beautiful country. I wanted him to see Williamsburg, Virginia Beach and the places where I fished on the ocean while I was pregnant. When we got to the base I had already decided to give my sob story as to why we were there. To reminise. Well, we drove right onto base without even being stopped.

Our friends Rog and Ruthie were here this week for his follow-up testing and doctor's visit. They still out at Maumelle Park while they are here. His doctor's appointment today revealed his is still in remission. What a blessing.

We met them last night to eat fish and we were at the restaurant for 2-1/2 hours. I believe we shook the rafters at times with our laughter. We truly had an enjoyable evening. They will be back for another followup in March.

ChemoSabe's last day on Dex and Velcade was today. He has been up at 3:00 a.m. every day this week. He traveled to Shreveport yesterday and was there by 9:00 a.m. Drove in the driveway at 5:45 p.m. He had labs today and everything is looking good.

We talked last night about wishing treatments were over. We know there are some meds he will have to take the rest of his life. But, you know.. if we got word he could stop treatment and meds, we would have that fear in the back of our minds -- is it coming? We have talked to too many patients in the last year that had MM came back like a vengeance on them. ChemoSabe spoke with a patient in Infusion that had been off his meds for four years. Did the doctors take him off? No... he just felt so good he didn't feel the need to continue. It is massive now.

Our doctors have told us if one slows up or stops treatments, the MM thinks it has won. After the stem cell transplant, if you have any MM left, it hides and waits. It knows you will feel better. Then it jumps back on board and attacks more massively.

As I sit at my desk upstairs I hear the hammering of our neighbors getting a new roof. I hear and see the children playing on the corner. We have a great neighborhood for that and for walkers. Then I see a nudnik go speeding by down to the dead end. I would calculate he is going 40 in a 25.

Big E and his mommy are going to Mississippi tonight. That leaves son home alone. He already has plans for the weekend. He is still trying to sell his bike and I tried to get him to ride with us tomorrow, but I guess we are just too old for him to hang around with. OR, we are to fast paced. I believe it may be the later and he doesn't want to admit it.

Well, Children -- I have done nothing today but bathe the dogs and wash their blankets. So, I guess I need to get around and do something before Poppy comes home. I will work on being more informative on my blog.

Have a good evening, weekend and Love -- Pepper Try a little patience with the nudniks in your life.

Thursday, November 5, 2009

Console - Word for the Day -- Thursday, November 5, 2009

Console (verb)

Definition: to alleviate the grief, sense of loss, or trouble of

Lord, I need your help today. Please guide me in the words, the wisdom, the compassion, strength and the honesty to share CheomSabe's experiences the last year with others.

I have been dealing with an individual at my work place facing brain and lung cancer. She began chemo treatments a few months back and radiation two weeks ago. She is going down hill fast. When I call to check on her the message machine says, "Please do not call me. I am too weak to take your call. Please leave a message." When we do talk, she is very open with me. I listen mostly. Her daughter comes in to the office and speaks with me also. She is already speaking of funeral arrangements. This is the same type cancers my sister-in-law was diagnosed with last October. She passed away in May.

Then we have a woman whose ex-husband is in the hospital with failing kidneys and he was diagnosed last week with Multiple Myeloma. They are wanting to give him a stem cell transplant immediately. I do not believe he has even had chemo yet. The daughters want to call me and tell me what the doctors are saying and want advise. His insurance won't pay for it.

Oh, my Lord....my honesty may be too much for these fragile situations. Please guide me in my response.

ChemoSabe has been up at 3:00 a.m. each morning this week. His labs are coming back in tremendous shape. Tomorrow is the last day for Dex and Velcade this week, then we are off for another two weeks. Remember, Velcade is the chemo shot..Dex is steroids.

I honestly do not know how this man keeps on trucking. He is in Shreveport today. He arrived there are 9:00 a.m. and will be back here by 6:00 p.m. It is a four hour drive. He won't spend the night anywhere. He has started up more jobs in the Louisiana area and we have joked about having to possibly move there. We then roll our eyes at each other, laugh and call out names loudly of those a move would affect. Mike, Tommy, Easton, Velta, Betty, Gordon, Teresa, Chaundell, Bud, Sandy... and the list goes on. Guess we could take them with us! NOT.... We are too old to move anyway.

His six month testing begins again on the 18th. He will have his first colonoscopy, followed by MRI, bone marrow biopsy and CT scan. We are hoping his 25 lesions have decreased in size this time around. Remember, his last tests showed he still has them, but they are not growing... Good that they aren't, bad that he still has them.

Holiday plans are in the works. Families are antsy about who is doing what and with whom. Time frames are already on a crunch. Tension is in the air. I won't be losing weight because of my eating, but that I will be stretching myself from one location to the other in equal amounts of time. Oh, if it were only that easy.

We are blessed that we have family.

My day off tomorrow is already full of plans. I don't care... I love this weather. I almost rode my bike to work today, but I think it would wrinkle my slacks too much to drape on the chaps. We will be heading out over the weekend.

Get ready for upcoming tests. I haven't given you one in quite some time. It will be loaded with questions. First one back with all the correct answers gets a round trip vacation to the Bahamas!! You are paying, of course.

Have a great day and Love -- Pepper (Thank you for listening. It was consoling)

Wednesday, November 4, 2009

INVECTIVE -- Word for the Day -- Wednesday, November 4, 2009

Invective • \in-VEK-tiv\ • noun

Definition: an abusive expression or speech; insulting or abusive language

Wow -- this is the Word for the Day in the dictionary... BUT, I can do this!

I got the message last week when my aunt told me she really hadn't been looking at my posts, BUT she knew I hadn't written since October 5. No, she wasn't invective. In fact, I have never heard a bad word come out of her mouth. I ain't like her.

ChemoSabe began his two week on; two week of deal last Tuesday. I don't believe he has had as much energy as in the past. I know this because -- he hasn't vacuumed! Although his appetite has increased due to the steroids.

It has been a very busy month. Much of my days off on Fridays have been spent with my little (6 ft. 2 in. tall) brother. He is the disabled wheelchair. We have had some interesting visits. I work on his computer for him and he is becoming quite the guru with my teaching. I introduced him to Yahoo IM a few months back and he wears me out until around 10 p.m. on my BlackBerry. ChemoSabe smiles when he hears the Taco Bell bell I put on the IM notification for Mike.

We went out Friday and got him a used 1997 24 ft. travel trailer. We all use to camp a lot in the day. He misses it and wants to take his adopted granddaughter camping. So, I approved the purchase.

Saturday night, very late, he tripped on a blanket hanging off the bed and fractured his right femur. He has two hip replacements. The surgeons will be deciding on surgery or not. I will be giving him stomach blood thinner shots for 21 days. I was already giving him his arthritis shots every Monday. When I ask if he is in pain, he just shakes his head no and says he is a Marine.

ChemoSabe and I made a much needed relaxing bike trip to Mountain View last Saturday. The weather was beautiful. Since it is the end of the year we haven't been able to do anything the last four weekends because of his work. All work and no play makes Pepper grumpy.

I have been taking my frustrations out of rearranging and cleaning out the garage, mowing, blowing and burning two acres of leaves. Bathing and beating the dogs! (Not) And, a variety of other things. The biggest and most fun is throwing my own pity party. Then, I wonder why I am the only guest... ha

I did have reason to whimper when I assumed the position of a hood ornament on the back deck last week while blowing leaves. I had the back pack blower on my back and slid on a wet spot. Left leg went straight out to the left and right leg bent underneath the big rumpus with ankle in twisted position. Right wrist attempted to hold up the blower; left wrist banged wildly against upper deck to steady myself. All the while my cell phone was vibrating in my back pocket. If I don't answer, the caller attempts again... Guess that helped the immediate bruising on my buttocks as I came out of it with a lot of soreness for two days and no cuts or bruises. Hope my neighbor wasn't looking out the window as I was surely invective!

Do you ever hang around waiting for the other shoe to drop? Things haven't been too peachy keen, but hardly anything to complain about. We have the regulars like all those damn bills from UAMS (about a foot tall). Price of gas; those guys cutting in front of me at the I-430/I-30 split in the afternoon. So, life is good. ChemoSabe has an upcoming colonoscopy that I hope he doesn't cancel. He has already postponed it. He has never had one, but his cancer doc has demanded it before December. She actually told him it was suppose to have been done last March. So, that is weighing on our minds... I would die if anything comes up positive on it. I know he feels the same. Once your body hears that WORD, then he never forget the impact it has on your lives. Oh, how many times I have thought -- "I wish it was like before."

The Lord has been standing next to me all through my trials. He gives me strength. He is the only reason I have made it through all the hardships the last year. He picks me up, dusts me off and guides me into another day. Do you believe He does the same for you?

The end of the month ChemoSabe begins his testing again. The dreaded bone marrow biopsy, MRI and CT scans. Our next appointment is the first week of December. I remember writing back in May 2008 about such visits as the "Dreaded Visit". We have a much better feeling each time we go now. Our last visit I was actually running late because the doctor came in an hour early... It took me about 20 minutes to arrive and she and ChemoSabe were having a personal discussion. I couldn't believe she actually waited on me... We really like her..

I look forward to the afternoon now. I suppose this is my favorite time of the year. I get home in time to blow leaves out of the drive and off the decks. I feel the autumn smells crawling up my nose as the leaves are blowing over with the dampness. It reveals healthy foliage underneath which reminds me I will have more grass to mow in the summer.

The birds are burrowing down for the evening and you can hear the dogs in far off yards greeting their masters as they arrive home from work. Eager for attention and their evening meal.

I love to bake a pie in the middle of the week because it is cool outside. And, to build a fire in the hearth. I love this time of year.

Have a good evening and Love -- Pepper